Flash UpdatesSarepta Therapeutics Announces FDA Accelerated Approval of EXONDYS 51 (eteplirsen) injection, an Exon Skipping Therapy to Treat Duchenne Muscular Dystrophy (DMD) Patients Amenable to Skipping Exon 51. Important: The drug will be useful for DMD children with a confirmed deletion/mutation of Exon 51 only. Commercial sale of the drug will be launched soon in the U.S. Click Here for more info.

Flash UpdatesPUNAR-SANJEEVAN (Personality Development Program) is coming up. Click here for more details.

Flash UpdatesAccepting applications for Powered Wheelchairs and Motorised Tricycles. Click here for more details.

Indian Association of Muscular Dystrophy (IAMD)

Indian Association of Muscular Dystrophy (IAMD) is working since 1992 to provide relief and rehabilitation to the people afflicted with Muscular Dystrophy (MD) in India and also to create public awareness.  It is the brain child of Sanjana Goyal President’s Award Winner 2004, herself afflicted with Muscular Dystrophy. The organization is working for all types of disabilities in the State of Himachal Pradesh. Its Head Quarter at Solan (HP).

When a family gets the news that their child is suffering from some incurable disorder, their initial reaction is despair, disbelief which leads them to try all kinds of possible cures where they end up losing a lot of their hard earned money. Then gradually comes the acceptance of the bitter fact that there is really no cure for this cruel and crippling disorder which can be very depressing for the parents and the person living with Muscular Dystrophy. This is when Indian Association of Muscular Dystrophy (IAMD) comes into picture. We are very happy and proud to say that now all the medical practitioners actually refer IAMD to such patients. What IAMD does is counsel the afflict and the family members, show them the right way to be able to deal with this blow to their lives. IAMD shows them a silver lining to the grey clouds in their sky. Even though there is no cure yet, therapy can help to arrest deterioration of this disease. IAMD also helps in personality development so that the person living with this disorder develops confidence and their despair changes to hope when they understand that they can still lead fruitful and happy lives despite their disability. This is where IAMD is different from other organizations in the country. It not only helps to provide the right therapies systematically but also gives affected person a reason to live happily and courageously. In a nutshell, IAMD helps them to live a life full of dignity, confidence and self worth.

Our Mission

  • To create greater awareness of Muscular Dystrophy
  • To reach out to each and every person living with Muscular Dystrophy and attempt to provide a normal life for everyone living with this disorder
  • Our Dream Project: IAMD is coming up with an Apex Centre at Solan, in Himachal Pradesh, for complete care management, test and diagnosis, rehabilitation, orientation, rejuvenation, research & all therapies for MD sufferers. The total cost of construction is estimated to be Rs.13 crores. The construction work has started in July 2013 and we have already invested Rs.1.50 crores in the project.

IAMD is a registered organization having tax exemption under 80G, vide registration No.80-G/163/2011-12/798 with also having a PAN No. AAATI4948K.

If you want to donate, please use the information below (Donations to be made "In favour of Indian Association of Muscular Dystrophy"):

Bank A/C No: 30560503263
State Bank of India (IFSC CODE - SBIN0006401 Solan, Himachal Pradesh.

IAMD has also FCRA clearance for foreign donations at:

Bank A/C No: 666010100005739

You can also download IAMD's brochure here



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Developed By: Sumit Mehta
E-mail: innovation@sumitmehta.net