Sarepta Therapeutics Announces FDA Accelerated Approval of EXONDYS 51 (eteplirsen) injection, an Exon Skipping Therapy to Treat Duchenne Muscular Dystrophy (DMD) Patients Amenable to Skipping Exon 51.
Important: The drug will be useful for DMD children with a confirmed deletion/mutation of Exon 51 only.
Commercial sale of the drug will be launched soon in the U.S. Click Here for more info.
PUNAR-SANJEEVAN (Personality Development Program) is coming up. Click here for more details.
Accepting applications for Powered Wheelchairs and Motorised Tricycles. Click here for more details.
Indian Association of Muscular Dystrophy (IAMD)
Indian Association of Muscular Dystrophy (IAMD) is working since 1992 to provide relief and rehabilitation to the people afflicted with Muscular Dystrophy (MD) in India and also to create public awareness. It is the brain child of Sanjana Goyal President’s Award Winner 2004, herself afflicted with Muscular Dystrophy. The organization is working for all types of disabilities in the State of Himachal Pradesh. Its Head Quarter at Solan (HP).
- To create greater awareness of Muscular Dystrophy
- To reach out to each and every person living with Muscular Dystrophy and attempt to provide a normal life for everyone living with this disorder
- Our Dream Project: IAMD is coming up with an Apex Centre at Solan, in Himachal Pradesh, for complete care management, test and diagnosis, rehabilitation, orientation, rejuvenation, research & all therapies for MD sufferers. The total cost of construction is estimated to be Rs.13 crores. The construction work has started in July 2013 and we have already invested Rs.1.50 crores in the project.
IAMD is a registered organization having tax exemption under 80G, vide registration No.80-G/163/2011-12/798 with also having a PAN No. AAATI4948K.
If you want to donate, please use the information below (Donations to be made "In favour of Indian Association of Muscular Dystrophy"):
Bank A/C No: 30560503263
State Bank of India (IFSC CODE - SBIN0006401 Solan, Himachal Pradesh.
IAMD has also FCRA clearance for foreign donations at:
Axis Bank (SWIFT CODE - AXISINBB366)
Bank A/C No: 666010100005739
You can also download IAMD's brochure here
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